So, the diet was going really well...
However, Phillip
and I were having a very difficult time catching all the calories we
needed. When you bike and train jiujitsu, the calories needed and
expended are high. When you can't have carbs, it's challenging to catch
up. I think that the elimination diet takes a lot of time, and serious
dedication that we can't afford in our lives right now.
We
found it helpful to cook chicken and sautee vegetables with quinoa or
rice for dinner. But, when you train jiujitsu or work at night...it's
challenging to make dinner. And when you rely on the co-op, you spend
thirty dollars on lunch. I would eat, get to work, and be frustrated and
starving. It seemed like the days I didn't eat enough were also the
days I went home with awful headaches. They started at my shoulders and
worked all the way to my temples. Basically, we had to add things back
in because we just weren't eating enough.
However I did find that I felt better: less sluggish, more energy, (better sleep?). So we decided to make our own revised diet. We are continuing to cut many things but have also reintroduced a few things that we found necessary for nutrients. We added back in eggs. They are quick and packed with the protein we need.
We added granola back into our breakfast smoothies so we have more
complex carbs to help us later on. We are also less sticklers about the
meat we eat, although I don't eat pork anyways. No dairy except for
special treats. We don't mind if lime/lemon juice pops into our
otherwise "clean" soup.
We discovered that we need to start cooking whenever possible. We love the way we feel without sugar and bulky carbs
but we are allotting ourselves ONE cheat day a week for some of our
favorites like pizza! Our relationship is built upon celebration. We
celebrate every little tiny thing from being home together to training
together. We celebrate Phillip's good grades and my writing escapades,
we celebrate when we fight and when we make up. Food is part of
celebration.
Next on the management list!
I
have found anxiety to be the worst symptom. I get anxious for not
accomplishing things and then I wouldn't accomplish things because I
feel anxious. It's a vicious cycle.
Before I go to bed at
night, I make a list of what I will do the next day. The list seems
ridiculous when you look at it, because it's literally hour by hour what
I will do, but it helps. I don't have those moments where there's so
much to do that I don't know where to start.
I have
been forcing myself to wake up on time in the mornings. This still means
at least 9 hours of sleep, which I seem to need. I usually feel very
stiff and my hands are weak and difficult to close. However, after a
nice warm shower and a little bit of joint movement, I find that I can
start to tackle my day.
Also, I try to pick something
that inspires me to do for the half-hour it takes me to drink my
smoothie. Sometimes it's reading, sometimes it's watching jiujitsu
videos, sometimes it's writing. Whatever it is, it helps me stay
motivated about my day.
In the middle of a lunch rush at work, I walked into the kitchen alley
with a long list of "need to get" for my tables. Instead of rushing
around, I walked with swag. Yeah, swagger, which just so happens to be a
word used by Ken Kesey in "One Flew Over the Cuckoo's Nest," my current
read. The people in the psych ward have things much worse. I don't need
people who don't care about me to make my day worse. Now when a table
is rude or needy, I just take a deep breath and calmly go about my
business, instead of holding it all in and releasing my frustration on
Phillip the minute I get home from work.
I'm doing my best to not let Fibro be an excuse. Every time something pops into my head like, "I'm in too much pain to..." or "I'm to exhausted to..." I remind myself to be strong. I will only hate myself if I sit around and do nothing. I am a writer and a bjj girl and a server and a girlfriend and a caregiver, I'm not a butt sitter.
Ali - I love you and I am so proud of you! keep up the amazing work and research you have done! You never have been and never will be a butt-sitter! You are an amazing person and I wish you all the best! Keep up the good work sweetheart!
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